How Orthotics Support Children with Rare Conditions

Every year on the last day of February, families around the world recognize Rare Disease Day. It’s a time to raise awareness for the millions of people living with rare conditions, and to acknowledge the caregivers who often navigate complex medical systems, long diagnostic journeys and day-to-day uncertainty. 

A rare disease is typically defined as a condition that affects a small number of people, but taken together, rare diseases are not rare at all. Many are diagnosed in childhood and can affect muscle tone, joint alignment, balance, coordination or overall mobility. For parents, one of the most common questions becomes: How can I help my child move more comfortably and confidently? 

This is where orthotics can play an important role. Orthotics are custom-made devices designed to support alignment and movement. In children with rare conditions, orthotics are not about restricting motion, they are about making movement easier, safer and less tiring. 

For some children, orthotics help improve stability at the ankles or feet, reducing falls and increasing confidence when walking. For others, they help support proper alignment, which can reduce pain and prevent unnecessary strain on growing joints. Many caregivers notice that with the right support, their child has more energy throughout the day and can participate more fully at school, at home or on the playground. 

Orthotics can also support developmental progress. When balance or strength is a challenge, a child may hesitate to explore movement. By providing added support, orthotics allow children to practice walking, standing or running while continuing to build strength and skills, often alongside physiotherapy. Regular follow-ups ensure devices continue to fit well and meet a child’s changing needs. Caregivers play a vital role here by monitoring comfort, watching for skin issues, and sharing observations with their orthotist. 

Rare Disease Day is about visibility, understanding and support. While orthotics may not change a diagnosis, they can make a meaningful difference in how a child experiences the world, supporting mobility, independence and participation in everyday life. 

For many families, that support matters more than words can say.

 

The Custom Orthotics Team (519) 850-4721 | office@customorthoticsoflondon.com | @cool_bracing